DROP IN
Headway Teesside
Newport Community Centre
St Paul's Rd
Middlesbrough
TS1 5NQ
Every Wednesday
12:00 - 14:00
CONTACT
Alastair White
+44 1914 456 451
ne.regional.co-ordinator@headway.org.uk
NATIONAL HELPLINE
0808 800 2244
www.headway.org.uk
Useful Organisations
This section gives details of other organisations. Clicking one of the letters below will jump straight to that section.
A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z
AVM Support UK
01670 737 231
info@avmsupport.org.uk
www.avmsupport.org.uk
Provide various support services for people affected by Arteriovenous Malformation (AVM).
APIL (Association of Personal Injury Lawyers)
11 Castle Quay
Castle Boulevard
Nottingham, NG7 1FW
0115 958 0585
www.apil.com
APIL (the Association of Personal Injury Lawyers) was established in 1990 by a group of lawyers working on behalf of personal injury victims and now has over 5,000 members. It is an independent, not for profit organisation providing accreditation to lawyers specialising in the area of personal injury law. Hold a directory of accredited solicitors.
Aphasia Now
‘Aphasia now’ is a website started by an aphasia wanted to get in touch with like minded and other sufferers to learn more about the invisible disability.
Association of Speech and Language Therapists in Independent Practice
Can supply details of therapists by region or specific condition.
ARCOS – the Association for Rehabilitation of Communication and Oral Skills
0845 122 8697
www.arcos.org.uk
ARCOS is a national charity. We work with children and adults who have communication and eating (swallowing) difficulties, their families, carers and others involved. ARCOS provides information, advice, practical help, specialist therapy training and other services not readily available elsewhere.
Brain Tumour UK
Tower House
Latimer Park
Chesham
Bucks, HP5 1TU
0845 4500 386
www.braintumouruk.org.uk
enquiries@braintumouruk.org.uk
Brain Tumour UK works to conquer brain tumours through research, education and support.
Brain Injury Association of America
105 North Alfred Street
Alexandria, VA
22314, USA
1 (703) 236-6666
www.biausa.org
Family Helpline: 1 (800) 444-6443
Aims to create a better future through brain injury prevention, research, education and advocacy.
Brain and Spine Foundation
Tel: 020 7793 5900
Fax: 020 7793 5939
Helpline: 0808 808 1000
www.brainandspine.org.uk
Research, education and information. Booklets on a wide range of neurological conditions and symptoms and an online discussion forum. Helpline is staffed by neuroscience nurses.
Brain Injury Wales
Tel: 01656 773658
www.braininjurywales.com
Brain Injury Wales is a professional service offering independent brain injury case management.
Brake – the road safety charity
Tel: 01484 559909
Fax: 01484 559983
Helpline: 0845 603 8570
helpline@brake.org.uk
www.brake.org.uk
Brake, the national road safety charity, works to stop death and injury on the roads and to care for people affected by road crashes. Brake also runs educational initiatives and campaigns for tougher laws against dangerous drivers. Brake produces a range of support literature for people bereaved and injured at these particularly devastating times. This literature is distributed by the police forces following every fatalcrash and often after a serious injury. Brake also runs a helpline, through which its highly trained operators can support families and friends following the aftermath of a road crash. The helpline provides both emotional support as well as practical information on the many procedures that follow a death on the road. The helpline also acts as a signposting service directing callers to counselling services, trauma therapists and self-help groups.
Brain and Spinal Injury Charity (BASIC)
The Neurocare centre
554 Eccles New Road
Salford
Manchester
M5 5AP
Tel: 0161 707 6441
Fax: 0161 206 4558
enquries@basiccharity.org.uk
www.basiccharity.org.uk
BASIC provides a specialist resource at the Neurocare Centre for people and their families in crisis following a traumatic brain injury or neurological diagnosis.
Brain Injury Rehabilitation Trust (BIRT)
60 Queen Street
Normanton
Wakefield
WF6 2BU
Tel: 01924 896 100 (admin centre)
Fax: 01924 899 264
director@birt.co.uk
www.birt.co.uk
The Brain Injury Rehabilitation Trust (BIRT) is a leading European provider of specialist brain injury rehabilitation, helping people regain lost skills, recover social independence and rebuild their lives following acquired brain injury. Twelve residential rehabilitation units, located throughout England, offer clinically led assessment and rehabilitation services excellent facilities, many of them modern and purpose built. Community based support, including twenty supported houses and home support packages, is also available. BIRT is a division of The Disabilities Trust and the means by which it provides its brain injury services
Brain Tree Training
PO Box 79
Leatherhead
KT23 4YT
Tel: 01276 472 369
enquiries@braintreetraining.co.uk
www.braintreetraining.co.uk
Produce home-based cognitive rehabilitation courses for those with acquired neurological injuries.
Brainwave Centre ltd (Brainwave Centre for rehabilitation and development)
Marsh lane
Huntworth gate
Bridgewater
Somerset
TA6 6LQ
Tel: 01278 429089
Fax: 01278 429622
brainwavetherapy@hotmail.com
www.brainwave.org.uk
Design home-based programmes of rehabilitation for children involving both physical and cognitive techniques.
British Association of Brain Injury Case Managers (BABICM)
PO Box 1919
Sheffield
S7 2DW
Tel: 01604 879171
www.babicm.org
secretary@babicm.org
BABICM is a professional association that was established in 1996 to promote the development of case management in the field of acquired brain injury.
British Dietetic Association
Tel: 0121 200 8080
www.bda.uk.com
The British Dietetic Association, established in 1936, is the professional association for dietitians. Its aims are to:
advance the science and practice of dietetics and associated subjects
promote training and education in the science and practice of dietetics and associated subjects
regulate the relations between dietitians and their employer through the BDA Trade Union.
British Institute for Brain Injured Children (BIBIC)
Tel: 01278 684060
www.bibic.org.uk
BIBIC is a national charity offering practical help to families caring for children with conditions such as autism, cerebral palsy, Down’s syndrome, developmental delay, traumatic and acquired brain injury and specific learning difficulties such as attention deficits hyperactivity disorder, dyslexia and dyspraxia.
British Society of Rehabilitation Medicine (BSRM)
www.bsrm.co.uk
admin@bsrm.co.uk
The Society encourages doctors in all clinical specialties to be involved in education and research into the management of disability. Membership of the BSRM is open to all registered medical practitioners interested and concerned with its objectives.
Chase Park Rehabilitation Centre – Whickham Villa
Whickham Villa
8 Millfield Road
Whickham
Newcastle-upon-Tyne
NE16 4QA
General Manager: Boda Gallon
0191 488 7351
In association with our Therapy Team from Neural Pathways, Chase Park Rehabilitation Centre provides facilities to support health promotion, the development of every day skills and stimulation of the senses, whilst also offering opportunities for relaxation and tranquility. We offer short and long term placements including continuing-care and high dependency nursing for people aged 18 and over.
info@whickhamvilla.co.uk
www.whickhamvilla.co.uk
Child Brain Injury Trust (CBIT)
Unit 1, The Great Barn
Baynards Green Farm
Nr Bicester, Oxfordshire
OX27 7SG
Tel: 01869 341 075
info@cbituk.org
www.cbituk.org
Helpline: 0845 601 4939
helpline@cbituk.org
The Child Brain Injury Trust (CBIT) supports children, young people and families affected by an acquired brain injury, to enable them to achieve their potential.
Carers UK
Carers UK is a membership organisation of carers, led by carers for carers.
Chartered Society of Physiotherapy
14 Bedford Row
London
WC1 4ED
Tel: 020 7306 6666
www.csp.org.uk
The Chartered Society of Physiotherapy is the professional, educational and trade union body for the country’s 45,000 chartered physiotherapists, physiotherapy students and assistants. It aims to support its members and help them to provide the highest standards of patient care.
Cancerbackup
3 Bath Place
Rivington Street
London
EC2A 3JR
Tel: 020 7696 9003
Fax: 0207696 9002
Helpline: 0808 8001234
www.cancerbackup.org.uk
info@cancerbacup.org.uk
Provides information about all aspects of cancer. Operate a national information and support service to cancer patients and their families. Provide a counselling service in Glasgow and support centres at regional hospitals.
Challenging Behaviour Foundation
32 Twydall Lane
Gillingham
Kent
ME8 6HX
Tel: 01634 838 739
www.thecbf.org.uk
info@thecbf.org.uk
Provide an info service, fact sheets, support network to improve the lives and conditions of people with learning disabilities and challenging behaviour, their immediate family and carers.
Criminal Injuries Compensation Authority (CICA)
Tel: 0141 331 2726
Fax: 0141 331 2287
Helpline: 0800 358 3601
www.cica.gov.uk
The Criminal Injuries Compensation Authority administers the criminal injuries compensation scheme throughout England, Scotland and Wales. We pay compensation to people who have been the victim of a violent crime.
CRUSE Bereavement care
Tel:0870 167 1677
www.crusebereavementcare.org.uk
helpline@crusebereavementcare.org.uk
Young persons free phone: 0808 808 1677
Care Choices ltd
Valley Court
Croyden
Herts
SG8 0HF
Tel: 0800 389 2077
www.carechoices.co.uk
Care Choices Ltd offers a free residential/care home search service. The company has a database of care homes, nursing homes, elderly accommodation and similar establishments throughout the UK.
Contact a Family
Contact a Family
209-211 City Road
London
EC1V 1JN
Tel: 020 7608 8700
Fax: 020 7608 8701
Helpline: 0808 808 3555 (10am-4pm, Mon-Fri)
Textphone: 0808 808 3556
www.cafamily.org.uk
Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children – no matter what their health condition. We also enable parents to get in contact with other families, both on a local and national basis. Each year we reach at least 250,000 families.
CO Awareness
CO-Awareness is an organisation that supports the many victims of Carbon Monoxide (CO) poisoning and Toxic Combustion (TC) poisoning, their families and friends.
Commission for Social Care Inspection
Looking for a care home? Get free, independent reports on the quality of your local homes and care services to help you make an informed choice.
Different Strokes
9 Canon Harnett Court
Wolverton Mill
Milton Keynes
MK12 5NF
Helpline: 0845 130 7172
Fax: 01908 313 501
www.differentstrokes.co.uk
info@differentstrokes.co.uk
This is a new charity for young stroke survivors aiming to provide access to physio and exercise, information and counselling and advice on further education and job opportunities.
Disabled Living Foundation (DLF)
380-384 Harrow Road
London
W9 2HU
Tel: 020 7289 6111
Helpline: 0845 130 9177
Text phone: 020 7432 8009
www.dlf.org.uk
info@dlf.org.uk
DLF are the leading source of information on disability equipment. They aim to give advice and information on any aspect of disability presenting problems through providing an information service and answering queries by telephone and letter. Maintain a large equipment display area, which may be visited by appointment.
Disability Alliance Education and Research Association
Universal house
88-89 Wentworth Street
London
E1 7SA
Tel: 020 7247 8776
Fax: 020 7802 8250
www.disabilityalliance.org
Aims to break the link between poverty and disability.
Disability Rights Commission
Incorporated into Equality and Human Rights Comission. See E
Expert Witness Directory
Helpline: 020 7393 7780
www.legalhub.co.uk
See also: British Psychological Society (BPS)
Equality and Human Rights Commission
Helpline (England): 0845 604 6610
Helpline (Wales): 0845 604 5510
Helpline (Scotland): 0845 604 8810
www.equalityhumanrights.com
The Equality and Human Rights Commission champions equality and human rights for all, working to eliminate discrimination, reduce inequality, protect human rights and to build good relations, ensuring that everyone has a fair chance to participate in society.
Headway Ireland
Headway Ireland
101 Parnell street
Dublin 1
Tel: +353 (0)1 872 9222
www.headwayireland.ie
services@headwayireland.ie
The Hawthorns – Barchester Care
The Hawthorns Care and Neuro Rehabilitation Centre
Peterlee
County Durham
SR8 5UP
General Manager: Julia Atherton
0191 587 1251
Julia.Atherton@barchester.com
www.barchester.com
The Hawthorns operate a 35 bedded unit which caters for Active packages of Rehabilitation, Complex Neurological packages of care, Minimally Conscious and community ventilated clients
Independent Living Fund
Independent Living Funds
PO Box 7525
Nottingham
NG2 4ZT
Tel: 0845 601 8815
Fax: 0115 945 0945
www.ilf.org.uk
client.service@ilf.org.uk
The funds were set up as a national resource dedicated to the financial support of disabled people enabling them to choose to live in the community rather than residential care.
Law Society
113 Chancery lane
London
WC2A 1PL
Tel: 020 7393 7780
www.lawsociety.org.uk
info.services@lawsociety.org.uk
Meningitis Trust
Fern House
Bath Road
Stroud
Gloucestershire
GL5 3TJ
Tel: 01453 768000
Fax: 01453 768001
Helpline: 0845 6000 800
www.meningitis-trust.org
info@meningitis-trust.org
Funds medical research into the disease. Increases awareness of meningitis and supports sufferers and their families. The trust has produced free information aimed at both health care professionals and the general public. Grants are also available to families affected by meningitis.
Momentum Scotland
Tel: 0141 221 2333
www.momentumscotland.org
Support people to remain active citizens in their communities through the provision of mainstream employment and personal support services for a wide range of clients in the following areas: brain injury, mental health, employment and training, job retention, pan-disability, care and supported living and community rehabilitation.
Neurological Alliance
The Neurological Alliance
Stroke House
240 City Road,
London
EC1V 2PR
Tel: 020 7566 1540
www.neural.org.uk
admin@neural.org.uk
The Neurological Alliance is a wide range of neurological charities which have come together to make life better for people in the UK with a neurological condition. Our aims are to raise awareness of neurological conditions and their impact; inform and influence policy makers about the needs of people with neurological conditions; secure the highest standards of service and improved care for people with neurological conditions; promote research and the dissemination of information about neurological conditions.
NHS Direct / NHS 24 / NHS Direct Wales
Tel: 0845 46 47 (NHS Direct England & Wales)
Tel: 08454 242424 (NHS 24 Scotland)
www.nhsdirect.nhs.uk (England)
www.nhsdirect.wales.nhs.uk (Wales)
www.nhs24.com (Scotland)
Medical advice from qualified nurses.
Office of the Public Guardian
Tel: 0845 330 2900
www.publicguardian.gov.uk
The Office of the Public Guardian supports and promotes decision making for those who lack capacity or would like to plan for their future, within the framework of the Mental Capacity Act 2005.
Office of the Public Guardian (Scotland)
www.publicguardian-scotland.gov.uk
The Office of the Public Guardian has a general function to supervise those individuals who have been appointed to manage the financial or property affairs of an adult who lacks the capacity to do so for themselves. The office is based in Falkirk and covers the whole of Scotland.
Parkinson’s Disease Society (PDS)
215 Vauxhall Bridge road
London
SW1V 1EJ
Tel: 020 7931 8080
Helpline: 0800 800 0303
www.parkinsons.org.uk
enquiries@parkinsons.org.uk
Aims to help patients and their relatives with problems arising from parkinson’s disease, to collect and dissemenate information on the disease, to encourage and provide funds for research into the disease.
Princess Royal Trust for Carers
Tel: (020) 7480 7788 (advice line)
Fax: (020) 7481 4729
info@carers.org
www.carers.org
The Princess Royal Trust for Carers is the largest provider of comprehensive carers support services in the UK.
Rehab UK
Borough Buildings
58-72 John Bright Street
Birmingham
United Kingdom
B1 1BN
Tel: 0121 616 3900
www.rehabuk.org
Rehab UK provides assesment, training and development programmes that enable people with diabilities to break into the workforce. Operates a number of brain injury vocational centres and training programmes for people with mental health problems.
Relate
Herbert Gray Collgeg
Little Church Street
Rugby
Warwickshire
CV21 3AP
Helpline: 0300 100 1234
Fax: 01788 535007
www.relate.org.uk
Aims to support marriage and family life. Relate has a range of litreture and can refer to local branches for individual counselling services.
Relatives and Residents Association
Tel: 020 7359 8136
www.relres.org
Provides information and support about carehomes.
RoadPeace
Helpline: 0845 4500 355
www.roadpeace.org
UK national charity provides emotional and practical support to road crash victims (bereaved and injured) and runs a Helpline which is open from 9am-9pm 7 days a week. Campaign for road safety.
Royal Association for Disability And Rehabilitation (RADAR)
12 City forum
250 City Road
London
EC1V 8AF
Tel: 020 7250 3222
Fax: 020 7250 0212
Minicom: 0207 250 4119
www.radar.org.uk
radar@radar.org.uk
RADAR is a co-ordinating body with over 500 members associations. It acts as a pressure group on central and local government. RADAR is concerned with every aspect of disibility, but is particularly involved with access, education, employment, holidays, housing, mobility and social services.
Royal National Institute for the Blind (RNIB)
Helpline: 0303 123 9999
www.rnib.org.uk
Supporting people with sight problems
Stroke Association
Stroke House
240 City Road
London
EC1V 2PR
Helpline: 0845 3033 100
Tel: 0207 566 0300
Fax: 020 7490 2686
www.stroke.org.uk
info@stroke.org.uk
Aims to carry out a programme of research, health, education, rehabilitation, welfare, and counselling services, publishing books, posters and leaflets and organising conferences.
Samantha Dickinson Brain Tumour Trust
Tel: 0845 130 9733
www.braintumourtrust.co.uk
enquiries@sdbtt.co.uk
Since 1996, the charity has become the largest dedicated brain tumour charity in the UK with the highest level of laboratory based brain tumour research in the country. The Trust offers support to patients diagnosed with a brain tumour as well as their families and/or carers.
SCOPE
6 Market Road
London
N7 9PW
Tel: 020 7619 7100
Helpline: 0808 800 3333
www.scope.org.uk
response@scope.org.uk
Supporting people with Cerebral Palsy
Speakability
1 Royal Street
Londan
SE1 7LL
Tel: 020 7261 9572
Fax: 020 7928 9542
Helpline: 0808 808 9572
www.speakability.org.uk
Advice line for people with dysphasia (loss of language following stroke or head injury), their families and professionals. Advice on accessing services, benefits, holidays, equipment and computer technology. Also gives advice on self-help groups and speech therapy.
Trust-Ed
Provide educational services for young people with acquired brain injuries
United Kingdom Acquired Brain Injury Forum (UKABIF)
Tel: 01986 784452
www.ukabif.org.uk
Aims to promote understanding of all aspects of Acquired Brain Injury and to provide expert input to policy makers, service providers and general public.
Vitalise
Tel: 0845 345 1972
www.vitalise.org.uk
info@vitalise.org.uk
Vitalise provides respite care and short breaks for disabled people and carers.